Every Cast gets us Closer to a Cure
AEG Media is teaming up with Nike employee Bill Farnum in his quest to find a cure for his 3-year-old daughter.
As a Nike employee since 1996, Bill Farnum of the U.S. Apparel organization has had a series of challenging jobs. When his toughest role came in his personal life, he did what Nike employees do. He took action.
In December, Ella, Bill’s daughter, was diagnosed with an incurable disorder called Rett Syndrome.
Rett Syndrome is a debilitating neurological disorder that affects almost exclusively girls. The disorder occurs in 1 in every 15,000 girls and is completely random. The girls develop normally until 18-24 months of age and then begin to lose their speech and motor skills. Most lose hand functionality and many develop seizures, scoliosis, and can lose the ability to walk. One prominent doctor states, “We all are familiar with neurological diseases; I'm sure everyone has seen some one with epilepsy, or Parkinson's disease, bipolar disorder or cerebral palsy. But when you see symptoms of all these diseases in one individual, as in Rett, you are struck by this.”
Bill’s third fundraiser of 2008 for the IRSF (International Rett Syndrome Foundation) will take place August 8-10th in the snow capped Rocky Mountains of Colorado. With the help of the Rocky Mountain Angling Club, Sage fly rods and the High Country Club, 8 two-person teams will be putting their fly fishing skills to the test in a catch and release competition. They’ll be fishing private waters along the Fraser River in Winter Park and the Yampa River in Steamboat Springs.
Entry fee is $600 per person ($1,200/team). Entry fee includes 2 days access to great private water fishing on properties of the Rocky Mtn. Angling Club, 3 nights lodging at a beautiful 10,000 sq ft. house in Steamboat Springs courtesy High Country Club, and all the food and drink you can handle. There will also be a live auction Saturday night for some great prizes including a Sage Z axis rod and 2550 reel.
If you are interested, please contact Bill Farnum at bbfarnum@mac.com. Space is limited to the first 16 people. There will be a $100 deposit to hold your spot.
100% of the proceeds will go to the International Rett Syndrome Foundation.
AEG Media stands behind Bill and his family and will work with him to help find a cure for Ella and many like her.
Learn more about Ella and the Farnums fundraising efforts at http://www.believe-in-me.org
Learn more about Rett Syndrome. http://www.rettsyndrome.org
As a Nike employee since 1996, Bill Farnum of the U.S. Apparel organization has had a series of challenging jobs. When his toughest role came in his personal life, he did what Nike employees do. He took action.
In December, Ella, Bill’s daughter, was diagnosed with an incurable disorder called Rett Syndrome.
Rett Syndrome is a debilitating neurological disorder that affects almost exclusively girls. The disorder occurs in 1 in every 15,000 girls and is completely random. The girls develop normally until 18-24 months of age and then begin to lose their speech and motor skills. Most lose hand functionality and many develop seizures, scoliosis, and can lose the ability to walk. One prominent doctor states, “We all are familiar with neurological diseases; I'm sure everyone has seen some one with epilepsy, or Parkinson's disease, bipolar disorder or cerebral palsy. But when you see symptoms of all these diseases in one individual, as in Rett, you are struck by this.”
Bill’s third fundraiser of 2008 for the IRSF (International Rett Syndrome Foundation) will take place August 8-10th in the snow capped Rocky Mountains of Colorado. With the help of the Rocky Mountain Angling Club, Sage fly rods and the High Country Club, 8 two-person teams will be putting their fly fishing skills to the test in a catch and release competition. They’ll be fishing private waters along the Fraser River in Winter Park and the Yampa River in Steamboat Springs.
Entry fee is $600 per person ($1,200/team). Entry fee includes 2 days access to great private water fishing on properties of the Rocky Mtn. Angling Club, 3 nights lodging at a beautiful 10,000 sq ft. house in Steamboat Springs courtesy High Country Club, and all the food and drink you can handle. There will also be a live auction Saturday night for some great prizes including a Sage Z axis rod and 2550 reel.
If you are interested, please contact Bill Farnum at bbfarnum@mac.com. Space is limited to the first 16 people. There will be a $100 deposit to hold your spot.
100% of the proceeds will go to the International Rett Syndrome Foundation.
AEG Media stands behind Bill and his family and will work with him to help find a cure for Ella and many like her.
Learn more about Ella and the Farnums fundraising efforts at http://www.believe-in-me.org
Learn more about Rett Syndrome. http://www.rettsyndrome.org
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